Downs Pregnancies Up But Downs Births Steady
Researchers in England have noted that although the number of pregnancies where the fetus has been identified as having Downs Syndrome has increased notably — from 1,075 in 1990 in England and Wales to 1,843 in 2008 — the number of births has stayed virtually constant. In fact, the number of babies born with Downs went from 752 to 743 — a decrease of slightly over 1%. So, what’s up with that? Why more pregnancies, but births remain the same?
The rise in the number of Down’s pregnancies is attributed to the increase in older women getting pregnant. Due to improvements in screening methods, however, more women are able to choose to abort the pregnancy, resulting in the number of births remaining steady. “What we’re seeing here,” explains Joan Morris, professor of medical statistics at Queen Mary and lead researcher on the study, “is a steep rise in pregnancies with Down’s syndrome but that is being offset by improvements in screening. It was thought that these improvements would lead to a decrease in the number of births with Down’s syndrome. However, due to increases in maternal age this has not occurred.”
Advocates for those with Down’s syndrome, however, say that more education is needed and that if parents understood the reality of the condition, there would be far fewer abortions. “You’re led to believe that it’s the worst thing that could possibly ever happen to you,” says Eddie Batha, whose daughter was born with Down’s. “And then you realise it’s just another human being who happens to be a little bit different.
When my wife was pregnant with our first child, she took a test which she thought showed that our son had Down’s — we later learned that the test only showed an increased chance, high enough that the doctors performed an amniocentesis to find out for sure. Although it turned out that our son did not have Down’s, I’ll never forget the phone call from my wife telling me that Jared had Down’s. I don’t know what we would have eventually done, had the amnio proved positive, but abortion was certainly an option.
It’s a tough call — Down’s syndrome is certainly no walk in the park, but neither is it the end of the world. I don’t know that I am strong enough to take that on, but certainly other parents, better parents than I, can and do. What do you think?
Photo: National Institute of General Medical Sciences
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Tags: abortion, birth defects, chromosomes, down syndrome, down's syndrome, genetics, trisomy
23 Comments
Anonimon commented on Oct 29 09 at 11:38 amIt is tragic that parents believe that their children are better off dead than different. I’m not saying that it isn’t scary or hard or counter to people’s hopes and dreams. Nonetheless, it is a sad commentary on our our society that it is more accepted to end a pregnancy than parent a child with Downs.
lauren commented on Oct 29 09 at 1:13 pmWell put, Anonimon.
lisa commented on Oct 29 09 at 1:31 pmOK, here’s the problem I have with this study. It looks at prenatal testing which shows trisomy defects (of which there are several, most are fatal with the baby often dying before birth). OK, increased number of older mothers therefore an increased number of trisomy defects. I can halfway swallow that although that has come up for recent debate. The problem is they are only measuring births and not including or controling (as far as I can tell) for miscarriage. I would be interested to know that. Also, they don’t mention any data for increases in abortion and abortion by age. My point is, I think these needs deeper digging before everyone makes conclusions.
Rosana commented on Oct 29 09 at 2:01 pmI agree Anonimon. In my case I expect to be pregnant again after my 35 birthday and even if the trisomi blood test indicates a high risk of having a child with Down Syndrome I am not going to have an amnio, since it increases the chance of abortion. It is my child and will raise him/her.
Em commented on Oct 29 09 at 2:26 pmI agree, Anonimon. Especially considering that the reason there are so many pregnancies in older mothers is because those mothers are trying everything they can TO get pregnant. To think that people go through fertility treatments and then decide that you don’t want to deal with a baby who has Down’s or another genetic disorder is scary to me - if they can’t deal with that, I’m afraid they won’t be able to deal with a lot of the stuff that comes along with the rest of parenting.
I also agree that there needs to be more communication about what it is like to raise a kid with special needs. My son has a genetic disorder, and we had no reason to look for it before he was born. Some days are very hard, but I wouldn’t go back and decide not to have him because he is different.
mightydoll commented on Oct 29 09 at 3:10 pmI’m gonna go off the beaten track, a bit, here but I really don’t think that anyone should have a baby if they don’t think it’s a baby they can manage. We have a choice for a reason, and the only person who can discern whether it’s something they can handle is the person faced with that decision. It doesn’t make them bad, weak, selfish or incapable of parenting some other child at some other time, it just makes them realistic and self-aware.
There should be more support for parents of kids with special needs, but there isn’t, and the judgement faced by parents of even typical kids on a day to day basis can be crippling enough. It’s a terrible idea to bring more people into this world who aren’t wholeheartedly wanted and whose parents aren’t equipped to give them everything they need.
SteelRigged commented on Oct 29 09 at 3:31 pmAs the sibling of a person with disabilities and someone with close contact to several Downs’ adults I’m going to back up Mightydoll. Babies are cute. Downs babies and kids are cute. Fourty year olds, Fifity year olds with the functional capacity of children; not that cute. I have been involved with restraining a 40 year old man having a two year olds temper tantrum about pudding. His mother is still his primary care-taker and she’s seventy. My sister will always need to live with and be supported by family. She will live with my parents as long as they are able to care for her and then she will live with me. I’ve known this my whole life and it has affected where I live, the work I do, and who I married. (’Cause when he picked me he picked her too, and he had a right to understand that.) This is not a life people should be thrust into unwillingly.
ChiLaura commented on Oct 29 09 at 3:55 pmmightydoll said: “There should be more support for parents of kids with special needs…”. I can’t help but think that, hmmmm, maybe there would be more support if there were more special needs people around. Instead, it’s easier to just kill them, doncha think?
I don’t think that it’s any fun time raising someone with disabilities. But these are PEOPLE. Next will we be aborting schizophrenics, depressives, autistics, because they make life more difficult? Where does it end?
Knitty commented on Oct 29 09 at 5:40 pmI think being the parent of a disabled child has made me schizophrenic. On one hand, I think that if you aren’t willing to accept that your child might have or develop a disability, you have no business being a parent. But then I also think that unless you’ve had the experience of being a parent (or the sibling) to a child with a severe disability like DS or autism, you really have no idea what you’re talking about. In a lot of sad cases, it’s a lot more than just having a child who is a little “different.” And while I try hard not to judge parents who chose to abort their DS children — if I were lucky enough to get pregnant again, I wouldn’t have the amnio because I wouldn’t abort for any reason.
You’re right ChiLaura — all children are people first, not just a potential set of problems. I know fully-abled, completely NT children who are more challenging than my daughter. There are no guarantees.
Ana Voog commented on Oct 29 09 at 6:05 pmi really hate this article. and i hate that they are calling it “down’s pregnancy”
i have a daughter with DS, and when i was pregnant with her it was not a “down’s pregnancy” it was just a pregnancy like any other.
my daughter is a joy. i’m honoured to be her mother.
i’m 43 and pregnant again and i will not have any tests done.
my children are my children.
my husband and i make these decisions together just as we make our children together. why do these articles always focus on the women only?if you aren’t capable of loving your children for exactly how they are, perhaps parenting is not for you. there are no guarantees.
most disabilities happen later in life, anyway. so if you think you free of life’s differences because you can abort what you think is less than perfect, then think again.
life is not in your control and to think you have control over it is naive.
also, to those who don’t think they could handle it, you need to get over yourselves. and don’t sell yourselves so short. we are all capable of more than we think we are. and in all actuality, it’s not that big of a deal.
people with down syndrome are people. no more or less and yes it really is that simple.
Bekka commented on Oct 29 09 at 7:12 pmNobody is suggesting killing children with Down’s - we’re discussing abortions. It is misleading and offensive to parents who have had to make that difficult decision to talk about killing children.
jenny tries too hard commented on Oct 29 09 at 8:12 pmI would take mightydoll’s comment to a different level— No one should KEEP or RAISE or PARENT a baby she does not think she can manage. It shouldn’t be a shame to step away from a situation you can’t handle, so long as “stepping away” doesn’t involve stopping someone else’s beating heart. I hate to think of institutions, but respite care, and, yes, adoption (not everyone is looking for the perfect baby) should get more support.
Can anyone seriously argue that a late-term abortion is much different from killing a child? Most proponents of late-term abortion seem to argue that it’s “compassionate”—essentially that the baby is better off dead. Down Syndrome babies often grow up to lead long, happy, fulfilling, and (in some cases) productive lives. The first time I remember knowing someone with DS was when my family shopped at a grocery store where a man with DS bagged groceries. He was very well-like and when he was killed crossing the street to his apartment (a drunk driver ran the redlight at the crosswalk) his memorial was so full, the church had to turn people away. I personally think people with special needs ought to be seen and heard and the people who meet those special needs more valued, and dehumanizing a “fetus” with special needs by using euphemisms to describe the termination of their lives does not help.
lisa commented on Oct 29 09 at 9:19 pmOK, how the hell did this become a late term abortion topic. DS is not a late term abortion issue. I would hazard to guess that if/when these pregnancies are terminated, it’s well before it can be called “late term”. These tests are performed earlier in the pregnancy. I also find the “I would never perform a test” blah blah blah because I wouldn’t do anything anyway. Ignorance is bliss for some, but for others forewarned is forearmed. I just really hate how prenatal testing has become synonymous with abortion, when these can and for many are, a source of reassurance and prevention for some.
See this is what I find so frustrating. A half baked study becomes a lightening rod and nobody is willing to look deeper or ask questions. Why are we taking this as gospel truth. I’m going to go out on a limb here and say that there haven’t been enough studies to really give us an insight here.
mightydoll commented on Oct 29 09 at 10:04 pmSorry, but I do not believe that abortion = killing a child.
And I DO have a special needs child, as a matter of fact, and I don’t think it’s for everyone. It’s hard work. It’s physically, emotionally and, particularly, financially straining. It’s also rewards and love and pride, those things are NOT mutually exclusive, we cannot brush aside, however, the extra resources required to raise special needs children. In most cases, one parent winds up stepping down or giving up their career, and/or their hobbies. With what usually amounts to less income, parents have to pay higher expenses. People who don’t know (and whose business it isn’t anyway) often decide to blame the mother. It doesn’t require strength to love and be proud of a special needs child, but it absolutely requires strength to move through day to day life with one.
If it came down to it, I absolutely would have my son over again, and I absolutely don’t think our family has the resources for a second special needs child. As it is, my typical child is feeling the strain of one special needs sibling.
The lack of resources for parents of special needs children will NOT be solved by MORE special needs children. That’s patently absurd, when you consider that resources are much higher than they were when, say, my uncle was a child (he was born mentally retarded and died at age 60) even though there are more options to abort.
NOLAMOM commented on Oct 29 09 at 10:34 pmWow, I thought I was on Babble, not Babycenter!
Mary commented on Oct 30 09 at 8:25 amPlenty of things that come up in life are hard. Some are harder than we think we can handle. But eliminating the problem is not always doable, and sometimes, when it is doable, it’s wrong. We can’t eliminate everyone who brings us inconvenience and even severe hardship. And often the “inconvenience” turns out to be a blessing. A new little life is always good and by the time it has been conceived it’s much too late to be second guessing.
Mary commented on Oct 30 09 at 8:33 amI knew a man who literally gave his life for his Downs Syndrome son. I would hope that I could do the same for any of my children, born or unborn, disabled or healthy. I think it’s sad that some people would not even give them a chance to come into the world.
jenny tries too hard commented on Oct 30 09 at 9:40 amI don’t know about anybody else, but I didn’t get offered an amnio till well after 12 weeks into my pregnancy, that’s why I classified the decision to abort a special needs baby as a late-term abortion. I did get an “abnormal” AFP result in the first trimester of my first pregnancy, but my doc said that test was more or less used to decide whether or not to have the amnio, rather than to decide to abort or not.
Mightydoll, I don’t think people are arguing that MORE special needs children will solve the problem of limited resources per se. The point, in my opinion, is that by furthering the notion that special needs people are better off dead, or never being born, dehumanizes and devalues them, and that if the tendency to abort special needs babies continues, society will be less willing to support special needs families. People do still blame the mother when a special needs child is born—I read more than one nasty piece about Sarah Palin’s decision to keep her special needs baby. One condemned her for not “returning what was no thing back to nothing”. That’s the issue.You can see how society’s attitude toward a need affects the supply of resources more than the actual need by looking at help for single mothers in the 50s vs. today. There are more children being raised in single parent homes now than in the 50s, but society’s attitude toward these families has changed so that greater resources are available than before. I hope the same will be true for special needs families.
Blacksheep commented on Oct 30 09 at 12:31 pmJust a comment for the author: did your wife really think the triple screen results meant your baby definitely had T-21? Because if so, she should get a new doctor! Her doctor obviously didn’t explain how the screening works. The triple screen shows a risk, expressed as a number, such as 1 in 50 or 1 in 1,000. It is never intended to be diagnostic!
lisa commented on Oct 30 09 at 9:49 pmYou’re right Jenny, amnios are usually done around 12 weeks; however, 12 weeks would not be considered viable and therefore not late term. Late term is closer to 20 weeks when the baby has a chance at survival outside the mom. Late term abortions are actually not that common at all and generally are done for the sake of the mother. I saw online that it’s about 0.08% of all abortions. The vast majority are done before 12 weeks — before amnio is an option. Less than 8% of abortions are performed after 12 weeks.
Lee commented on Oct 31 09 at 8:07 pmFor genetic testing, chromosome analysis, and evaluation of an abnormal AFP test, amniocentesis is usually performed between the 15th and the 20th weeks of pregnancy. There is a much higher rate of miscarriage associated with amniocentesis that is performed earlier than the 15th week.
Complete results can take as long as three weeks, but many labs are able to process the sample in as little as ten days. This would leave a woman who had the amnio at her 15th week well into her 17th week of pregnancy before receiving results. Then you add a few days to make a decision about whether to continue the pregnancy, at least a few days before an appointment for the abortion can be scheduled…now we’re easily at 19-20 weeks.
Google “amniocentesis” and check out the ’sponsored links’ in the right sidebar.
lisa commented on Oct 31 09 at 11:04 pmOh, well if it made it into the Google ads it must be true then. Because nobody understands Google analytics or how to take advantage of them. I take it back. Amnios cause late term abortions, that is, unless you miscarry first.
jenny tries too hard commented on Nov 01 09 at 9:41 amPast twelve weeks is late enough to turn my stomach, honestly, and there is no denying at that point that the baby is a good deal more than a clump of cells. I only have my own experience to go on, which was the offer of an amnio after 12 weeks, and my mom’s experience of being offered an amnio at 15 weeks, but I would’ve considered an abortion at either point a “late-term” abortion. I didn’t know there was a technical cut-off date other than the first trimester to be considered a late-term abortion. I always got the idea (though I don’t follow the whole pro-choice argument too well) that the first trimester was the cut-off for a normal abortion. No one says an amnio causes late-term abortions, but they do apparently reveal “flaws” in the fetus which women consider in deciding whether or not to terminate a pregnancy. Personally, the idea of aborting a special needs baby and trying again for an “easier” one is pretty repulsive and seems like a false sense of security. Congenital CMV causes more developmental delay and intellectual impairment than Down Syndrome, but we didn’t know my daughter had it untill well after she was born because I hadn’t shown any symptoms when I got the virus during my pregnancy.







