Being Pregnant
A Simple Prenatal Test Raises The Question: How Much Do You Want To Know About Your Unborn Child?
According to an article in the Washington Post, within a year pregnant women will be able to test for Down syndrome using a simple blood test at 9 weeks into pregnancy.
And, according to researchers, within 5-10 years a prenatal blood test will be able to detect a whole lot more eye color, height, chance of being gay, chance for certain cancers, depression and as many as 100-200 diseases, including Alzheimer’s. We’ve long contemplated these possibilities but now it seems the reality is close upon us.
The easy and early blood test for chromosomal abnormalities will likely come as a relief to those who would opt for more invasive genetic testing like the CVS or amniocentesis which carry a risk of miscarriage. But the fact that we’ll soon be able to get so much advance information about our unborn kids brings up all manner of ethical questions.
Here are a couple of quotes from the thought-provoking piece published yesterday by the Associated Press, “Could prenatal DNA testing open Pandora’s box?” by Malcolm Ritter.
“This really changes the experience of what it will be like to be pregnant and have a child,” said Marcy Darnovsky of the Center for Genetics and Society in Berkeley, Calif. “I keep coming up with the word, game-changer.” She wonders if parents would withhold their commitment to a pregnancy until test results show a fetus is “good enough” to be born. And what, she asks, is good enough? She and others worry about how well couples will be able to understand this flood of information, and just what should be revealed.
****“That knowledge has a flip side. ‘How much responsibility are we expecting people to take for the genetic makeup of any child they might have?’ asks Josephine Johnston, a research scholar at the Hastings Center, a bioethics think tank near New York City. If a child is born with a condition that could have been detected, the presence of the test changes that outcome ‘from something that happened to you, to something that you participated in,’ she says. ‘That’s a very big burden to place on would-be parents,’ she said, adding that it’s hard for a pregnant woman to refuse any test for a medical condition because it feels like the responsible thing to do.”
The culture of consumerism has already overlapped with genetic testing, it’s hard to imagine that expectant parents wouldn’t be put through the ringer trying to decide what constitutes a “healthy” future for an unborn child, whether this has to do with fitting in or having a 50% chance of developing a particular kind of cancer. There is already a movement of concerned parents and advocates for the mentally disabled about the way Down syndrome has become a part of a routine genetic testing conversation with older parents about whether to continue a pregnancy.
The other question is how much will we get from this debate? We can’t turn back the technological clock. If we opt not to test, there’s the still the fact that the test exists. We will all have a relationship to that potential for information, whether we choose to get it or not.
How much would you want to know about your unborn child? Would you turn down testing for disease-prediction? For eye color? If you could find out your son or daughter might be gay, would you? Do you imagine a future where genetic testing becomes yet another way for us to be savvy (ruthless?) consumers? And would this feel like a new freedom or a heavy burden?
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9 Comments
Katy E commented on Jun 13 11 at 4:41 pmWell, do you get the test to prepare your heart for what may or may not be or to terminate your pregnancy should results prove unfavorable? I don’t think I’d be very interested in the “disposable pregnancy/baby” mindset. It feels cruel.
Now, if I were pregnant over 35 I might consider having the test run to prepare myself for what may come but other than that, not so interested especially since I wouldn’t terminate the pregnancy.
Kara commented on Jun 14 11 at 6:52 amI think this opens the door to far too much info. “What ever happened to Build it the best you can and hope you did well” I’m 32 and did the triple marker- that opened up a whole new world of testing, which I opted out of and went with the good ol’ ultrasound to prepare myself, my family and my home for what every issues may arise. At 17, 24 and 26… I never got those tests, I wasn’t offered them nor did I ask about them. I also feel that the company that puts out these tests will push them much like they do new drugs. . . Golf Clubs for those that sell 10 a month!
I wouldn’t want to know my childs eye color, or if they are gay. There is supposed to be challenge and surprise to life. What is perfect? And why are we all seeking such perfection from our children. What happened to RAISE THEM and SEE what they grow into? !? !? !
Brenda Rivera. commented on Jun 14 11 at 6:53 amPeople over 35 are not the only ones to have babies with genetic disorders ,Downs syndrome is cause by a double strand of the 23rd chromosome brought on by a deficiancy of Folic Acid so it can happen at any gestational age, that said I think the test is not to diagnose anything in particular it will just state the pre disposition for certain traits and deseases , I’m 39 years old and had my son at 36 ( all my children were born after 30 ) and he’s a healthy 3 year old I got the AFP test and a full body scan test just to ne prepare and not to decide wether or not have the child because termination was never an option I think these test can help you get a glimpse of what’s to come and whatever desicion is made , should only concern those who make it
Tonya Furr commented on Jun 14 11 at 7:32 amThey need to worry about finding a cure for cancer….Let GOD do his work and leave the babies alone….
Heather commented on Jun 14 11 at 7:55 amI am pregnant and opted for routine testing to check for birth defects or chromosomal abnormalities because I would appreciate having a head start in educating myself about how best to help my child if I were about to become the parent of a child with special needs. Terminating a pregnancy would never be an option for me, but I can imagine that caring for a newborn is overwhelming enough without having to throw in learning how to cope with special needs or a disability at the same time. If there is a test that would give us an edge on preparing ourselves, contacting the experts we will need, or even budgeting for special equipment – then I would love the opportunity to have that information before the mad sleep-deprived zombie period that is caring for a newborn (with or without special needs).
Meme commented on Jun 14 11 at 8:11 amI find it interesting that there would be a way to see if the child will be gay. Take that religious zealots who say being gay is a choice and you can be trained to me hetero!! Baby, you were born this way!!!
Meme commented on Jun 14 11 at 8:14 amI find it interesting that there would be a way to see if the child will be gay. Take that religious zealots who say being gay is a choice and you can be trained to be hetero!! Baby, you were born this way!!!
Teresa commented on Jun 14 11 at 8:21 amI wish all those tests were available now but if they are going to be as unreliable as the current tests they do on pregnant women to check for birth defects, I don’t want them at all.
Canuckmom commented on Jun 15 11 at 12:02 amI didnt even find out my babies’ genders! Didn’t want to know anything that wasn’t overly obvious on a 20 week ultrasound. And here the tests are all free so it wasn’t a matter of money.
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